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Treatment · Geriatrics / Geriatric Medicine

Palliative Care for the Elderly — Dignity and Relief Until the Very End

Here you will find selected medical experts and specialists in clinics and medical practices for the diagnosis, treatment, surgery and rehabilitation in the medical field Palliative Care for the Elderly. All listed physicians are specialists in their field and have been carefully selected for you according to strict guidelines.

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Brief overview — the essentials first

Palliative care is the active, comprehensive care of people with progressive, incurable illnesses. It does not begin in the final days of life, but often months or even years before death. The goal is not to prolong life at any cost, but to ensure the best possible quality of life, symptom control, and dignity. In Germany, about 45 percent of people die in hospitals, 30 percent in nursing homes, and only about 20 to 25 percent at home—even though most people prefer to die at home. This gap between desire and reality is not a matter of fate, but a matter of timely care planning. Specialized outpatient palliative care (SAPV) and inpatient palliative and hospice services make it possible in most cases to end one’s life with dignity at the desired location. This article explains what palliative care actually entails, when it is provided, and what patients and their loved ones should know—well before the final stage begins.

“At what point does someone actually become a palliative care patient?” I’m often asked this question during my office hours—often hesitantly, sometimes with fear. The answer surprises many: Palliative care doesn’t begin in the final week of life. It begins the moment the mindset shifts from “we’re going to cure this disease” to “we’re going to support this person.” That can be months before death, sometimes years.

The common misconception that palliative care is synonymous with end-of-life care is one of the biggest misunderstandings in the public perception. It leads to palliative care services being brought in too late—often only in the final days, even though they could have improved quality of life and dignity weeks or months earlier.

As a geriatrician, I work closely with palliative care physicians. And I see every difference that early involvement makes—for patients, for families, and for the course of the illness itself.

Definition and Goals of Palliative Care

Palliative care refers to the holistic treatment of patients with advanced disease and a limited life expectancy. This means that a cure is no longer possible and the patient will die from their illness within the foreseeable future.

Palliative care supports the patient during this time. It has the following goals, as modified by the WHO:

  • Pain control and alleviation of suffering,
  • Addressing the patient’s psychological and spiritual needs,
  • Involving the patient’s family,
  • Providing care and support at the time of death.

After the patient’s death, palliative care offers support to the family in coping with their loss.

When does the palliative care phase begin for a patient with colon cancer?

In the case of colon cancer, there are no definitive laboratory or imaging criteria that indicate the need to initiate palliative care.

However, the following list summarizes some key indicators:

Indications that the tumor could not be completely eradicated by previous treatments include:

  • tumor spread,
  • tumor-induced narrowing of the intestine, and
  • metastasis.

These signs suggest that the patient may be entering the palliative care phase of the disease and approaching death. In older patients with frailty syndrome, the transition to the palliative care phase may occur earlier and requires a particularly sensitive assessment.

Symptoms experienced by patients with colon cancer during the palliative care phase

Patient Needs During the Palliative Care Phase of Colon Cancer

Contemporary medicine is highly technology-oriented. However, especially during the palliative care phase of the disease, technical treatment methods are not the primary focus. Rather, the emphasis is on comprehensive general care, even outside of palliative care units.

Treatment is guided by the symptoms listed above. However, many patients have a strong desire for conversation. The fact that this desire is now harder to fulfill than in the past is linked to staff reductions and the high level of bureaucracy in the healthcare system.

A seriously ill woman in a hospital bed
In palliative care for colon cancer, human connection matters more than further treatments © Photographee.eu | AdobeStock

Patients know how they are doing through self-observation and changes in the behavior of their caregivers. For a long time, the hope of curing the cancer takes center stage. Eventually, however, this gives way to the desire to avoid suffering during the final phase of life. Above all, they need spiritual support from chaplains or family members.

Medical procedures, such as a paracentesis or blood transfusion, should be performed only with the aim of alleviating suffering.

With a living will—and even better, supplemented by a power of attorney for healthcare—the patient can determine

  • which treatments should still be provided and
  • which should be withheld,

should they become confused. A structured geriatric assessment is also recommended, particularly for older patients, to realistically evaluate treatment goals and limits. Patients also feel reassured when they know that their passing will be easier—for example, through terminal sedation—and that their loved ones will be cared for. Addressing polypharmacy in older adults early on and implementing targeted deprescribing can reduce unnecessary burdens during this phase.

Sources
  • World Health Organization (2020): Definition of Palliative Care. WHO, Geneva.
  • S3 Guideline on Palliative Medicine for Patients with Incurable Cancer. AWMF Register 128-001OL, current version.
  • German Society for Palliative Medicine (DGP): Care Structures of Palliative Medicine in Germany. Current version.
  • Temel JS, Greer JA, Muzikansky A et al. (2010): Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine. DOI: 10.1056/NEJMoa1000678

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